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Title
The phenomenology of bodily care: caregivers' experiences with AIDS patients before antiretroviral therapies in Lesotho |
Full text
http://www.ajol.info/viewarticle.php?id=47049 |
Date
2009 |
Author(s)
Makoae, Mokhantšo G; Human Sciences Research Council, Plein Park Building, 12th Floor, 69-83 Plein Street, Cape Town 8000, South Africa; mmakoae@hsrc.ac.za |
Abstract
This study provides an account of caregivers' experiences with the bodily care of AIDS patients before antiretroviral therapies were available in the public health sector in Lesotho. It describes the mechanisms through which the body may become a stressor in caregiving. The phenomenological method, guided by the notion of epoché, was used to understand caregiving experiences from the perspective of family caregivers. Data on caregivers' physical activities and what they saw and thought were collected through in-depth interviews with 21 caregivers (mostly females); the caregivers were identified with the help of HIV/AIDS counsellors at two hospitals where AIDS patients received medical treatment. The thematic analysis shows that a patient's body was central in caregiving experiences. Social interaction in caregiving was mediated through seeing and touching the bodies of the patients. The different aspects of caregiving and the close interaction with the body of an ill family member — especially seeing major changes in the patient's physical appearance, their declined capacity to perform the activities of daily living, and discovering the symptoms of their illness — contributed to the caregivers' experiences of sympathy and pain. The social meanings and boundaries that tended to persist regarding touching and accessing others' bodies and bodily matter also contributed to the caregivers' stress. Keywords: caregiving; chronic illness; HIV/AIDS; home-based care; phenomenological epoché; psychological aspects; social discourse; southern Africa; stress African Journal of AIDS Research 2009, 8(1): 17-27 |
Language
en |
Publisher
African Journal of AIDS Research Association of Crop Science, Uganda |
Type of publication
Peer-Reviewed Article |
Source
African Journal of AIDS Research - African Journal of AIDS Research; Vol. 8, No. 1 (2009) |
Rights
Copyright for articles published in this journal is retained by the publisher. |
Repository
Africa - African Journals OnLine (AJOL)
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Added to C-A: 2009-06-22;10:10:06 |
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